Still We Seek
Because some answers matter too much to stop looking.
Seeking understanding. Carrying hope.
01 / Our purpose
To seek is to believe something better may be possible.
Still We Seek is an emerging place for curiosity, compassion and purposeful action. We want meaningful questions to be heard, overlooked challenges to be seen, and credible knowledge to reach the people who need it.
We look for better ways to understand, care, protect, connect and live. Sometimes that begins with research. Sometimes it begins with a conversation. Often it begins with one person sharing what they know.
People · Progress · Possibility
Every story, question, lived experience and act of care can help someone else see what matters.
Through thoughtful research, better information, advocacy and collaboration, we can move important conversations forward.
We remain open to the overlooked idea, unexpected connection or practical step that might lead somewhere better.
Our first featured cause
Our family's experience with progressive supranuclear palsy (PSP) made this search deeply personal. PSP is a rare, progressive neurological condition, distinct from Parkinson's disease, that can affect balance, movement, eye movements, speech and swallowing.
There are still questions without answers. By sharing trustworthy information and pointing toward established organizations, we hope more families can find understanding and support.
CurePSP is an independent organization; no partnership, endorsement, funding commitment or treatment service is implied.
02 / Research & discovery
Curiosity opens doors. Evidence helps us choose which ones to walk through.
We hope to amplify credible research, connect knowledge and resources, recognize neglected needs and encourage responsible inquiry. Sometimes we'll discover an organization already doing important work—and help more people find it.
We are not currently conducting medical research, funding studies or enrolling research participants. Those possibilities require qualified partners, governance and resources.
03 / Advocacy & prevention
Better information. Safer workplaces. Honest questions about environmental exposure. Transparent decisions. Practical help for people living with serious challenges.
We believe these matters deserve careful investigation and accountable responses. We will distinguish established findings from unanswered questions—and never present an unproven theory as a fact.
Progress takes both conviction and humility.
04 / Help build what's possible
Still We Seek is just beginning. Its future will be shaped by people willing to bring a bit of knowledge, an introduction, a practical skill, time, resources, or a cause that deserves attention.
Interested in being a founding supporter? We welcome individuals and organizations who would like to help develop this effort from its earliest days.
I'd like to help by…
Founding supporter is an invitation to express interest, not an established membership, donation program, endorsement or promise of benefits. No funds are accepted through this website.
A personal beginning
The upcoming book Starfish Float and the tradition of Daddio's French Toast are among the ways a family's journey has become a chance to share awareness of PSP—and an invitation to care about others' unanswered questions, too.
Discover the upcoming book ↗Daddio's French Toast ↗05 / Connect with us
Maybe you have a question, an idea, a cause to share, or resources to bring. You don't need to know which initiative or person to contact. Begin here.
We welcome individuals, families, researchers, professionals, community groups and organizations. Every message will carry its topic, so we can understand the reason you're reaching out.
Please don't include identifiable medical records, confidential details about other people or unverified allegations. We cannot provide clinical care, emergency help or guaranteed individual follow-up.
How this works today: this prepares a message in your own email application. The website does not collect, store or send your answers. Review the prepared message and press Send in your email app. A secure in-site form requires separate activation.
Prefer to write directly? [email protected]
Learn more
We share independent, credible starting points for learning more. Some help explore health questions broadly; others are specifically related to PSP. None is an affiliate, sponsor or announced partner. Medical and research information can change.
This site shares educational information only, not medical, legal or professional advice.